We were discharged from the hospital on 7/4 at about 4pm. Greyson had a rough few days in the hospital prior to that. His stomach was...

I thought I would have more "down" time the past two days than we actually did. Greyson's surgery went great and shortly after the blog...

Adam and I are currently sitting in the pre-op room while Greyson is in surgery. Yesterday was Adam and my 3 year wedding anniversary. We...

Tonight was a hard night for me. Greyson was ready for bed around 6:30. We got both of his bottles ready- which consists of one small...

July 2019 we had our gender reveal at my parents house up in Michigan. I knew pretty much as soon as I saw that blue smoke that my life...

*Inappropriate language ahead* When we got the diagnosis- Adam and I did a lot of digging and researching what our future was going to...

COVID threw a wrench into a lot of things in 2020 for a lot of people. For our family it threw the biggest wrench into our typical summer...

Here are some of our favorites from our family photoshoot! I don't have them all uploaded yet so we will continue to share but I had to...

I've been struggling with what to write lately. I'm trying to focus on living in the moment and focusing on what we have going on today...

It's funny how time can change so much. I remember thinking when I was pregnant, that once Greyson was here, everything would be ok. I...

They always say no news is good news. They are right in our case I suppose. Greyson is still doing well and still a strong little man. No...

I think one of the biggest things I was scared about when I heard Greyson had tay-sachs was the complications that come from this...

I felt the need to capture small details today. I had to work this morning and when I got home I gave Greyson his afternoon bottle and we...

We met with Greyson's GI surgeon this week to discuss putting his g-tube in. We are looking at the g-tube for his future feeding tube...

Well, it's official. I am going part-time at work starting next week. I'm so incredibly thankful I am able to do this. I've been...

It's been a hot minute since I've been able to even sit down to start a new post. A lot has happened since the last post. For me - I have...

When Greyson was born, I really struggled with finding time for me. To be honest, I still do. I don't want to be a helicopter Mom, but...

When Greyson was first diagnosed, our geneticist told us he had only ever seen tay-sachs in one other patient. That patient had late...

Today was a hard day. Today was a really hard day. I had to go back to work and I'm struggling with balancing work time and home time. My...

This was Greyson in his car seat when we were getting ready to leave the NICU. This tiny little peanut in his big car seat. I had so many...