Silly summer days

You know those days when you wake up and you just know it's going to be a good day? Like you just wake up in a wonderful mood and just KNOW you're going to have a fun day.

That was how I woke up today.

I can't explain why, but I just knew today was going to be a good day. I woke up around 9 after having a quiet night with Greyson and had a good amount of sleep, the sun was shining, Grey's numbers looked good, and I knew we had plans for the day. Sometimes we get kind of stuck in our house with Grey where we won't all leave for days at a time. One of us will run to work, school, groceries, dinner, or whatever.. but not as a family. Yesterday I dragged Adam and Grey to Menards with me. I'm in search of collapsible saw horses that I can do my crafts on outside. My next project I want to try is making door mats, and I bought some outdoor paint and flex seal to make those so it needs to be done outside. I'd rather have the mats up at a level that wouldn't hurt my back to work on. Menards is quiet, with it being Memorial Day, so it was a really nice time just to explore the store as a family and get out of the house. We walked up and down the aisles pretending like we could afford all these home projects and imagining the what ifs. Some new light fixtures, new flooring, new bathroom cabinets, backsplash, and all the fun things to maybe eventually upgrade our house. We definitely can't afford them now with everything else going on, but fun to pretend!

Anyway, we knew today was going to be a busier day for the Rudness household. Greyson had his hospice nurse Karen come over at 12 for his massage. He needed a bath beforehand so I woke him up at 1130 while Dada got his bath ready. I went in his room and his eyes were wide open.. like he was just patiently waiting for me. I came in and sang him the good morning song and he started cooing instantly. Before the diagnosis, he would get so excited when we would come in his room when he would wake up. He LOVED when we would open the curtains and say "gooooooood moooooorrrrrning!" And today, after it being.. probably a solid year since we had that excitement, I got a little piece back. He was so excited when I opened his curtains and started singing. That's a wonderful way to start the day.

Then Adam gave Grey a bath while I packed his bags for the rest of our appointments. Karen came at the perfect time and Grey got his massage right after he was done with his tubby. Afterwards he had his lunch and he was so chatty. We got some great smirks and giggles out of him! It was so nice. So so nice. We had to push lunch a little faster than we normally do, but we had an appointment with a financial advisor at my work to look over our retirement plans. We had to rush home and get ready for Grey's physical therapy. It's been so long since we have been able to make PT- with Grey being sick, having ear infections, having a time where Adam and I can both go, and making sure we get a pool appointment. It was so nice to be back with Ms. Liz and get him in the water. Now, at this point on a regular day, he would've had a nap by then. Well with all our running, he really didn't have one.. so he was so tired and fell asleep in the pool while Dada and Liz did his stretches. When they were finished I scooped him out and started drying him off and he was zonked out. Slept through the whole thing.

After PT we ran to Auntie Denise's new house. She closed on a new home here in Green Bay today and I finally got to check it out! It is such a cute house, in a great area and neighborhood! Grey was sleeping so Adam stayed in the car while I got the tour. We figured we will come back again soon and they can check it out but Grey was so pooped. Once we got home Grey needed dinner so we hooked him up and he slept through it. He woke up and was so chatty and was laughing. We got bath number 2 ready (to wash the chlorine off from PT) and he talked to me the WHOLE bath time. He laughed, he smirked, told me stories.. it filled my heart to the brim. It was so incredibly nice to hear all of the noises. We took our time in the tubby so he could finish his stories and then got ready for bed. I used lavender soap tonight and as I sit here in his room, I can just smell his soap and lotion. It smells so good. We read two books and sang our goodnight songs. He's currently fighting falling asleep right now but is losing that battle. He was chatty and started giggling, but he got quiet shortly after and I can hear his breathing getting deeper and more rhythmic.

Today was a wonderful day.

It was so wonderful to hear our son giggle like he did. To see that smirk he does when he smiles. To hear his stories and coos. It just fills your tank.. I feel like we have been running on E lately.. but days like today fill it back up. In all fairness and transparency, that annoying, nagging, negative, voice in my head also made me very aware how unfair it is that something this small coming out of my two and a half year old son makes me this happy. He should be doing this every single day. He should be telling me real stories with words and having his personality really start shine. Instead, I'm so incredibly excited because he giggled today.. and actual giggle. Not a seizure giggle. I was SO happy because I tickled his tummy and he laughed. In response to stimulus.. not because he had a seizure. He was chatty with me- not telling me with words that he's learned- but with baby coos and noises. That voice always seems to need attention and pops it's ugliness out at some point during the day. So I shed my tears and then shut it down. To be honest, I wanted to tell it to STFU because you know what, we had a wonderful day. I felt genuinely happy for the majority of the day and I call that a huge win.

This video was when Grey was sleeping in his pack-n-play in our room. One of the morning videos I have.

He's just the dang cutest.

I need to keep taking videos and photos. He just always seems to know when I break out the camera and stops! I'm off the rest of the week from work and I hope the rest of the week is just like today. It feels like I've had a lot of "sad" days lately and it was just a really nice time to have a good day today. Greyson is finally drifting off to sleep and he sounds clear, his oxygen level is wonderful, and he just seems relaxed. Today was a wonderful day.

xoxo,

Kim

Oh- I also had a few people reach out to me regarding Greyson's amazon wishlist. I have been keeping it updated as his needs change and as his sizes change. He's currently in 5t+ in bottoms and 4t+ in shirts. We have noticed we like jumping bean brand from kohls over some of the carter's brand.. carter's pants are a little snug on him :) - https://www.amazon.com/hz/wishlist/ls/35Z2PMSJNVX2S?ref_=wl_share

We also have the gofundme still, our paypal and venmo. We are so thankful for all the support from everyone. Please continue to share the blog and our story too.

https://gofund.me/f6801998

Venmo is: @kimrudness

paypal: https://www.paypal.com/paypalme/rudnessfamily