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It's beginning to look a lot like...

  • Writer: kim.rudness
    kim.rudness
  • Nov 15, 2021
  • 4 min read

Christmas is my absolute favorite holiday. I always joke that my Dad is Clark Griswold from Christmas Vacation so it's in my blood. My Dad used to go all out decorating our house when I was growing up. We had two trees- one in the living room and one in the basement. The basement one had the village set up underneath and a train that would go around the tracks. The upstairs one had all our homemade ornaments on it, the old school bubble lights, and the tinsel perfectly placed on each branch. The outside of our house was always decorated.. every inch :) My Dad entered our house in the local lighting contests and he won a lot of years. I love the feeling that comes along with Christmas.. the warm and fuzzies!


It snowed for the first time in Green Bay yesterday and that feeling came right back. I woke up early to give Grey his meds at 8am and decided to stay awake and get crafting. I found some super cute designs I want to try out this year and I'm going to try to make some Christmas ornaments with glitter and vinyl. My two "warm and fuzzy" feelings- crafting and Christmas! I am currently sitting in my crafting space with Christmas music playing, my cutter cutting, my coffee, and the monitor with my sweet sleeping Grey on the screen. It's pretty perfect.


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Greyson has been doing ok. We have fully transitioned to tube feeds. He doesn't use the bottle anymore at all. It was a hard decision for Adam and I but we knew it's the safer option. Adam went out to his deer camp with his family for the past few days and we had a Mama and Grey weekend! He's been sleeping more and more, but we've gotten lots of snuggles in. He is coming down with a little bug- he's been really congested and stuffy the past few days. Last night he sounded really bad so I used the suction machine quite a bit to try and help suction the extra spit from his mouth and the snot sucker to try and get his nose cleaned out. Poor buddy was really gunky last night. I spent some extra time in his room trying to snuggle him and find him a comfortable spot to cough that out. We snuggled in his glider while he slept on my shoulder. It reminded me when he was just home from the hospital. We spent a lot of nights in that glider. He was so tiny, I could fit his whole little body on my chest. I'd lean back, put the boppy under his butt and tuck us both in with the blanket Auntie Courtney made for him. We'd sleep together until he was ready to eat again. They always say "don't sleep with your baby" but I'm glad I did. Those snuggles were always my favorite. You could tell how comfortable he was.. he was comforted having his Mama there, and I don't regret that at all. He's always been good at letting us know when he's done being held.. he never became dependent on me to hold him to sleep. He's always been a snuggler and I will soak up every snuggle! I think I slept better having him on me too, because I knew he was ok. He used to make a lot of noise when he slept when he was little that I never knew what was a sleep noise or a "I need you" noise.


When he first came home from the hospital we had him in a bassinet. We had it set up in the living room with Adam and I sleeping in the couches or recliner. We did not sleep much :) Every noise was OH MY GODNESS IS HE OK? We got used to it after some time, but I remember being so exhausted. This is one of the videos I took of him sleeping with the noises he'd make!


He still makes noises when he sleeps but it's more of a cooing noise. He makes big yawns and almost like hums when he breaths out. They're sweet noises- not so scary anymore. He's currently sleeping and making those noises as I craft in the basement. I have my Christmas playing and hearing him and the music makes this Mama's heart so happy.


Another thing that makes my heart happy- Adam just enrolled in the nursing program at our local college!! I'm so incredibly proud of him. He CRUSHED his GenEd classes.. I mean like all A's. Despite everything else we had going on and how much he wanted to be done at some points- he never gave up and legit crushed all of them. I'm considering going back soon too for either nursing or something with genetics. I'm not sure exactly but I know that I need to help other families in situations like ours. Greyson's legacy will change the world and I want to make sure of it. Our rare community is small but it's still bigger than it should be. I don't know how but Adam and I are going to work hard to change the world and share Greyson's life with as many people as we can :)


Alright- I'm going to go craft before my little man wakes up for the day! I'll post some pictures when I'm done!


xoxo,

Kim

 
 
 

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